re: abortion didn't work..

Quoting BeccaSauraus:" well, 90% of babies born with tetralogy of fallot survive and live very healthy lives with surgery done ... [snip!] ... done while still infants. As for the medicine and the effects, it could go either way- either surviving or dying in infancy."

I just learned about this in class. This condition is completely treatable so I don't understand why they would recommend termination.

I'd love to see an update.

Quoting 𝓪utumn𝓪l:" I just learned about this in class. This condition is completely treatable so I don't understand why they would recommend termination. I'd love to see an update."

Yeah I would too.

Guys. Give it up. She posted this in Aug. I really doubt she's coming back  

Wow, I am so sorry for just reading this now! Obviously, a serious of events has happened since. And for allwho have been wondering...... my little miracle is squirming in my arms as I am typing this! He was born October 14, and a pound less then 7. He really is my little miracle. Labor and delivery took a toll on him, and he had to be resesitated at birth and into an incubator. . he was also born with missing skin, cutis aplasia, in some areas on his body. The hospital I delivered him in had never seen this rare skin disorder, and he was transferred to the childrens hospital in the next state over. That itself was heart breaking considering I could not even hold or see him after all we had gone through the months before. I released myself the next day and spent a week with him in the hospital. After telling the doctors my history and after a series of tests, it was detected that the 6cm by 7cm area on his chest, the 3cm by 2cm area on his back, and the 2cm by 1.5cm on his arm,.... was from the injections. They are planning to perform plastic surgery along with his heart surgery in late Winter. The doctors at the hospital are actually writing a case study and putting us in the medical records books because of this crazy miraculous case. She told us that no one has ever survived the kcl and there were no known effects because of that. They are writing a story on it.

As of now...... he is snoozing off in my arms, at home. The skin areas, are forming into skin. Chest - .5cm x 1cm. Back- has now disappered. Arm- 1cm x .7cm. We go to the doctors next week, and by the looks of it, he will not even need the plastic surgery anymore! The missing skin, is now going away.. and he truly is a miracle. I love him with all my heart and he is mommy's little trooper. <3 Thankyou for all the support.. it really means a lot to know that so many people were following our journey.. i love and appreciate you all.

- mommaofamiracle <3

Quoting mommaofamiraclee:" Wow, I am so sorry for just reading this now! Obviously, a serious of events has happened since. And ... [snip!] ... for all the support and following me in my challenging journey. I appreciate and love you all. - mommaofamiracle <3"

I am glad he is doing well.

Quoting mommaofamiraclee:" Wow, I am so sorry for just reading this now! Obviously, a serious of events has happened since. And ... [snip!] ... means a lot to know that so many people were following our journey.. i love and appreciate you all. - mommaofamiracle <3"

Well damn I spoke to soon  



So glad to hear he is triving! He is a little fighter.   Good luck with everything.

thats wonderful hes on the road to recovery. i hope all goes well with his upcoming surgery. good luck to the both of u!  

So glad that he is doing so well....he truly is a miracle from God. Congrats momma!

Oh wow! That's amazing!! Glad he's doing so great  

Aw, I'm so glad to hear he's doing so good!

What an amazing story!

           

So happy you are holding that LO in your arms!  

Praying for him and his future recovery!

Awwww that is truly amazing!!    

WOOOOOT!!!!!!!!!!!!!!!!!! yeah momma best news ever   I'm so happy you and your precious little one are doing well How is his heart doing? I will definitely keep him in my prayers.
You are truly an inspiration to momma's out there that anything is possible. Big big hugs!

Congratulations! I am so glad to hear that he is doing well! He is a little fighter and I hope everything goes well for you guys!