re: done

<blockquote><b>Quoting NoahsSuperMom!:</b>" I have someone on facebook whos daughter was born at 23 weeks. Here is the fb page, I think it is really awesome getting to watch her progress! http://www.facebook.com/teamaveryjean"</blockquote>




This is the other one I was talking about.

My twins were born at 26 weeks 2 days. They are now starting high school in the fall. My daughter was 1 pound 10 ounces, my son was 1 pound 15 ounces, 11 and 11 1/2 inches long respectively. My daughter was found to have a grade 3 intraventricular hemorrhage, several blood transfusions for infections, and all the rest of the NICU somplications but was never on a venilator. My son was on a vent for 3 weeks, and had his fair share of medical issues as well. Both were released from the NICU at about my due date; son was 24 hr oxygen, daughter only needed oxygen to feed. Matching apnea and heart monitors for about 6 months. As far as developmental delays- I'd say they were pretty delayed. My son didn't walk until he was nearly 18 months old- didn't even sit up on his own until about 14 months. Motor skills were generally slow, although the girl-child seemed to catch up much quicker. My son's left optic nerve wasn't developing at the same rate as the right so we fully expected him to lose sight in the left eye but because we started with patching and other therapies, he has great vision now; just poor muscle control. He's had tubes in his ears (which may have added to the difficulty walking since he was always feeling off balance), adnoids removed twice, two surgeries to reposition eye muscles to allow him to use his eyes together, (and now wears glasses/contacts). My daughter has had no complications from her brain bleed what so ever. They are both honor role students in school, very "normal" in every other way, shape and form as their peers. Most wouldn't be able to tell that they had such a rough start in life. Check with your hospital/NICU unit for recommendations of support. Our hospital offered a "Parent supporting parent" group. Again, great peace of mind and comfort for the soul.

Quoting Tara - Anya's mommy:" My daughter was born at 27 weeks, she came out breathing too, but because they are so tiny, they wear ... [snip!] ... majority of the time it resolves on its own. Just tell her to ask any and all questions she may have to the nurses and doctors."

Yeah, she updated earlier that they had the vent on the lowest setting and were going to see how he would do with the CPAP soon. And she said they were going to start running tests on him and since he's so small that he would need a few blood transfusions because he would end up having a hard time replacing the blood they take for the tests. I tried to offer her a little support because I had a preemie, but DD was born at 34 weeks and I know a 26 weeker would have to go through a lot more than a 34 weeker, so really the only thing I could relate to would be just having to leave your LO in the NICU and even with that, an earlier preemie would stay longer which I'm sure is even more difficult. She tried to joke around earlier and was saying the only good thing about not being able to bring him home yet would be the fact that she had been told he was a girl through all the ultrasounds while she was pregnant, so she needs to redecorate his room before he comes home.   I just hope everything continues to go in the right direction for the baby.

Quoting Vanilla MILFshake.:" Yeah, she updated earlier that they had the vent on the lowest setting and were going to see how he ... [snip!] ... to redecorate his room before he comes home.   I just hope everything continues to go in the right direction for the baby."

Please keep us updated on him, and blood transfusions are a normal thing for preemies too, for the reason you mentioned.

Oh one thing to tell her, one of the hardest things I experienced, was seeing them change the feeding tube, I watched it once, could never watch again, its not that its bad or anything, but watching the baby gag, thats what got to me.

Quoting Shanaddy:" I follow a blog of a 26 weeker. She had a pretty rough time, but she finally came home 3 weeks ago, exactly ... [snip!] ... Here is the link to the 26 weekers blog.. I'm mobile so sorry for the crappy link... http://rachaelsanko.blogspot.com/?m=1"

that blog totally sucked me in. what a tough story. definitely a compelling read

<blockquote><b>Quoting regina_margot:</b>" that blog totally sucked me in. what a tough story. definitely a compelling read"</blockquote>




She is such a little fighter!! I've followed her since she was around 2 months old, and seeing pictures of her coming home, finally, was the most amazing thing. My girl is only like 3 weeks older than her, so it really tugs at my heart since their stories are so different. Her mom is so funny though! I LOVE the way she writes. We are fb friends now and she cracks me up.

My little one was born at 25 weeks 4 days gestation. he weighed 1lb13.58oz and was 13.5 inches long. He spent 80 days in the NICU. He was on ventilation for 6 weeks, CPAP for 2, high flow nasal canula for 2 and low flow for 1. He is now a 13lb 6mo old super happy and growing well.

birth:
6mo:

My son was a 27 weeker he weighed 1lb 9oz and was 13.5 inches. He spent 11 weeks in nicu. Was thought to have a brain bleed never did, had a pda that finally closed with the medicine, he was on the vent for 2-3 days then to the cpap for a week or so and then to the bubble cpap until about 4 weeks before he came home then he went to the cannula. I would inform he that its very touch and go with the tiny ones, my son was on track to come home sooo many times before he did but would drop weight or not finish feeds or get an infection... But now hes a happy healthy 14 month old who is into everything. He is developmentally a tad behind ( hes not walking yet) but ECI is an amazing thing and you should tell her to contact them as soon as her baby gets home.

This is him when he was born:
http://www.facebook.com/photo.php?fbid=2007907488064&set=a.2007906088029.2119691.1554990514&type=3

This is him now:
http://sphotos-b.xx.fbcdn.net/hphotos-snc7/406177_4258527192150_1730136664_n.jpg

She updated again. She said they did the brain and heart scan yesterday. They said they were pretty sure the PDA would close with the meds and they didn't find a brain bleed, so everything is still going good!  

<blockquote><b>Quoting Vanilla MILFshake.:</b>" She updated again. She said they did the brain and heart scan yesterday. They said they were pretty sure ... [snip!] ... were pretty sure the PDA would close with the meds and they didn't find a brain bleed, so everything is still going good!  "</blockquote>




That's so great to hear!