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re: VSD open heart surgery

posted 3rd Jul '12
My daughter was born in feb. at childrens hospital in wisconsin. The docs. found out she had A VSD and aortic coarctation while she was still in the womb.. The coarc. healed by itself a few days after she was born. They thought she was going to need surgery right away. She was in the NICU for a lil over a week. Sent home. she went to cardiologist every week then every two weeks now its once a month. She is going to be 5 months old on the 13th. When she was born they said they would need to do surgery when she was 4 months. Now they say they may wait till fall, or possibly longer/never if it closes on its own. (she has very large VSD)
quote
I have 3 kids & 2 angel babies & live in Waupaca, Wisconsin
posted 3rd Jul '12
Quoting Ailey+Lennon+Renner's Mom:" you can also qualify for 12 weeks of FMLA. id talk to a social worker thru a hospital as well and make ... [snip!] ... families. your daughter will also qualify for dissability until she is 18 if money is a concern, starting the day she is born"

we appllied for soc. sec. for our daughter after she got out of the NICU and we were denied =/
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I have 3 kids & 2 angel babies & live in Waupaca, Wisconsin
posted 3rd Jul '12
Quoting uberificlymagic:" we appllied for soc. sec. for our daughter after she got out of the NICU and we were denied =/"



ocial Security has a strict definition of disability for children.
• The child must have a physical or mental condition(s) that very seriously limits his or her
activities; and
• The condition(s) must have lasted, or be expected to last, at least 1 year or result in death.
A state agency makes the disablity decision. They review the information you give us. They will also
ask for information from medical and school sources and other people who know about the child.
If the state agency needs more information, they will arrange an examination or test for the child,
which we will pay for.
quote
I have 2 kids & live in Palm Beach Gardens, Florida
posted 4th Jul '12
Quoting Mama 2 Blake:" ocial Security has a strict definition of disability for children. • The child must have a physical ... [snip!] ... If the state agency needs more information, they will arrange an examination or test for the child, which we will pay for."

none of that is applicable with kids with a CHD. you dont have to fill out any questionairs or anything

http://www.disabilitysecrets.com/resources/social-security-disability-coverage/congenital-heart-disease.htm
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I have 3 kids & live in Zambia
posted 5th Jul '12
Quoting Ailey+Lennon+Renner's Mom:" none of that is applicable with kids with a CHD. you dont have to fill out any questionairs or anything ... [snip!] ... or anything http://www.disabilitysecrets.com/resources/social-security-disability-coverage/congenital-heart-disease.htm"

that was directly for the SSI website sorry. She may need to hire an attourney then,
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I have 2 kids & live in Palm Beach Gardens, Florida
posted 5th Jul '12
Also that link says :

First, the Social Security Administration (SSA) will make sure you meet the general disability eligibility requirements, and then it will look to see if your congenital heart disease meets or "equals" (is roughly equivalent to) one of the qualifying conditions established in the SSA's Listing of Impairments.
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I have 2 kids & live in Palm Beach Gardens, Florida
posted 5th Jul '12
i would talk to the social worker at the hospital and your cardiologist and reapply before hiring a lawyer.
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I have 3 kids & live in Zambia
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