Rylan Kain, my third born (story below pics)
His first set of hand splints. I think he was about a month old, if even
This is the first time he figured out to maneuver his dennis bar (he had serial casting, and this keeps his feet mostly straightened until surgery)
--he is 15 months old now ad was born with Arthrogryposis Multiplex Congenita. For some reason, early in my pregnancy with him when his joints were developing, he didn't move as much in my womb. You joints require movement in order to develop properly. He may have gotten sick--there is no known for sure cause. It occurs in 1 out of 3,000 births. They discovered he had clubbed feet and both hands were flexed with thumb in palm at the 20 week anatomy scan. We had followup ultrasounds, but I declined an amniocentesis (even though his defects are common with Trisomy 1
. I figured the odds of him having clubbed feet were 1 in 3,000--it made the 1 in 200 chances of going into preterm labor look horrible!! It was a long and scary pregnancy because he rarely moved in my womb. We made several trips to the hospital, and my amniotic fluid was always on the verge of being too low.
He was born perfect in my eyes. I cried and cried and cried when the doctor pulled him out, stopped everything and held him up just to reassure me he was okay. (Even though the NICU team was there waiting to immediately take him). He has normal brain function, although he is behind in speech (he is 15 months and only says mama), and physical development (he just learned to sit at 12 months). He has weak muscles, scoliosis, he will have to have surgery next month on his feet, and his hands will never be normal, although he uses them VERY well! He weighs 14 pounds at 15 months old. He has changed my life forever!