Hi all. If y'all remember I had my baby boy 9.5 weeks early. He has a syndrome called
Cornelia de Lange Syndrome. He weighed 2 pounds 4.9 ounces and was 14.5 inches long.
We finally got him home when he was 3 months old.
He was admitted back to the hospital 3 times after that for breathing trouble. He has been doing wonderful lately. He is nearly 7 months old. He weighs in at 10 pounds 12 ounces and is 22 inches long. He is still on oxygen so we are trying to wean him off of that right now. He also has a Mic-Key button and he isn't fes anything by mouth.


