In Jan I posted about my squad screen coming back abnormal for DS. I had Sofie in April and since then shes been diagnosed with brain development malformation. they said a virus called CMV caused it. Shes at high risk for seizures and shes going to suffer some mental retardation...has anybody had to go through this.
I've heard of it before, it's called Cytomegalovirus and usually is transmitted to child from mother before birth.
I haven't known anyone that has it but if you don't get any answers here, I'd google it and see if there is a website devoted to it or some sort of support group....I truly am sorry, mama and I'll keep you and your LO in my thoughts and prayers.
OP I wish you and your family the best. When my pregnancy turned sour they thought CMV might be the culprit so I did do some looking into it and I remember coming across a few sites with a lot of stories and such. Here's what I could find: http://www.mdjunction.com/forums/cytomegalovirus-discussions
From what I can remember CMV symptoms range on a very very large scale so it may take a while to find someone in a situation similar to yours. You should ask the Dr about support groups in your area maybe? Maybe there are support groups dealing with the symptoms your daughter has that might be beneficial as well. Good luck!