Sensory Processing Disorder

Looking for parents with kids, of any age, that suffer from SPD. SPD is very taxing on the entire family and I know i'm at the point I could really use some support.

HOW does SPD affect your child? How old are they? What kind of help are they getting? Anything you've learned that you think might help other moms?


Lets support each other!

Hey ! I haven't talked to you in forever! I am going to talk to the doctor about getting Jonas tested. Charles said I shouldn't but I'd rather know than not know.

Which one has SPD? Faith?

Thanks for making this.

DS is too and is getting screened next week its so apparent to his therapist and us that he has sensory issues.

My son Jonas has Autism with SPD.
It's mostly affects eating and bathing. He goes to a special education preschool where he receives therapy every week day; it switches back and forth from feeding therapy and OT.
It's helped him ten fold but it's still hard to deal wit every day! There's going to be at least one screaming/ crying fit daily... but we're hoping the improvement continues.

Quoting KristaAnne:" Hey ! I haven't talked to you in forever! I am going to talk to the doctor about getting Jonas tested. Charles said I shouldn't but I'd rather know than not know. Which one has SPD? Faith?"

You have very good taste in names   That's my SPD son's name!

Hey it has been!

Yes Faith has SPD. She's 4 now (in January) at 18 months i knew she was behind. by 24 months she was in speech therapy through the county. Then further testing showed she was delayed everywhere but gross motor. Between 24 and 30 months the fits started. Biting, screaming, scratching, head butting, hurting herself. She also started masturbating (by rocking legs spread on the floor) at 18 months. Then all the other signs of SPD started showing. At 3 she joined preschool through the county and it became even more apparent how bad it was and that she has anxiety. Tried for almost a year and a half to get her to do the brushing protocol with no success, until yesterday! She has preschool 2 days a week, a gross motor speech class once a week and goes to neurotheraputics once a week. She's also going to pedi neurodevelopment through kaiser and sees an extra OT and speech therapist at school. Faith also deal with self injurious behavior and has bitten nails almost completely off, picked holes in her skin, picked out her eyebrows, bit herself... any number of things. so I spend my week driving 4 days a week out to these places 30+ minutes out from my house dragging Rhodri along and right now her fits are nearly daily. I have to restrain her, shes drawn blood from her and myself.... Jordan is here but his role is more okay lets play. Or i say "she needs you to do __" he'll do that one thing that one time. Im the main lead in all of this and other than her teacher (the lady she's been with since she was 2) I have no one to talk to about it, that understands it. Really hoping to find some women that have done it or are doing it. Bounce around ideas or what affect different "treatments" have worked...

Sorry for the novel. I feel like this doesn't even explain it!!!

My 2 yr old was diagnosed with SPD. He has texture and touch SPD. Our therapist meets with him 2 times a month for touch and texture therapy and continuous training for us as parents. He also makes sure we are given new resources with local classes and child play time programs. Our son has issues with other children and people because he hates to be touched. We have to inform others not to touch him without his basic permission (If he doesnt hug you first dont hug him at all).
His siblings are too busy with their teenage life that it gives us special time with him to help him with his struggles but they also dont quite understand his behaviors because they are rarely around him which frustrates them when they are trying to play with him or what not..

Quoting KayteB:" My son Jonas has Autism with SPD. It's mostly affects eating and bathing. He goes to a special education ... [snip!] ... deal wit every day! There's going to be at least one screaming/ crying fit daily... but we're hoping the improvement continues."

I think this is all any of us can hope for. I expect 0 but hope.

Faiths affects a lot of things. But mostly textile. 99% of meltdowns are over dressing or bathing. but theres just that list of smaller things that add up. The communication also makes this a ton worse.

Quoting My Lil' Monster:" My 2 yr old was diagnosed with SPD. He has texture and touch SPD. Our therapist meets with him 2 times ... [snip!] ... his behaviors because they are rarely around him which frustrates them when they are trying to play with him or what not.."

great that you get so many resources! We've gotten really lucky with having SO much support for Faith. She also has an issue with touching. She's weird tho. She tries to invade other children's boundaries hugging them, touching their face and not necessarily gently. But doesn't like being touched and only recently will let you rub your hand over her back for more than 10 seconds.

I LOVE the brushing protocol tho. Just in 2 days its already doing wonders.It like centers her to earth. For 30 minutes after she can sit in one place and do a table activity. When generally she seems to have adhd. Which is something they've been talking about with her.

My doesn't do well out and about or at other peoples houses (even close family) unless he has his weighted vest on. He wears it at least 4 hours everyday, but his therapist would like me to try 4 hours in the morning with a 2-3 hour break at lunch and again in the evening until he wants it off. He functions like an entirely different kid with his vest.
I'm in process of ordering a lycra bed pillowcase that will act like a light weight weighted blanket- the pressure without the warmth.
We also have a cloth swing with pillows in the bottom. Swinging in gentle circles really helps to calm him.
Food has to be either puree or crunchy, otherwise he gags or can't chew and swallow. He's FTT and on pediasure.
Most of his clothes are too big or he won't wear them.
Shoes have to be a size too big or he cries.
Anyway he is 2.5 and also has a severe speech disorder. I'm open to giving my opinion/ideas. And open to hearing other peoples.

Quoting *J*:" Hey it has been! Yes Faith has SPD. She's 4 now (in January) at 18 months i knew she was behind. by ... [snip!] ... ideas or what affect different "treatments" have worked... Sorry for the novel. I feel like this doesn't even explain it!!!"

*hugs*

Jonas only shows small signs of SPD. He's 4 May 29th. He is not potty trained, will only eat a couple of items, hates getting messy, loves to hang upside down, is really into technology etc. There's a lot of small things, but I can't even think today. I've been sick and achy all day  

Speaking of Jonas his little butt is still awake

Quoting Angie Mother of Boys:" My doesn't do well out and about or at other peoples houses (even close family) unless he has his weighted ... [snip!] ... he is 2.5 and also has a severe speech disorder. I'm open to giving my opinion/ideas. And open to hearing other peoples. "

I have heard so may praises about weighted vests. We tried weighted blankets, weighted lap pad, the weighted vest... but she wont wear it more than 20 minutes but she did well when she did wear it. SO glad you LO enjoys the vest. Speech is a HUGE hurdle emotions have been a problem for us and recently she's been able to use pictures to show us how she's feeling. and she can now say "i'm happy" i LOVE having her come up to me and tell me "mommy im happy!"

Quoting KristaAnne:" *hugs* Jonas only shows small signs of SPD. He's 4 May 29th. He is not potty trained, will only eat ... [snip!] ... things, but I can't even think today. I've been sick and achy all day   Speaking of Jonas his little butt is still awake"

we caught it as something little. and catching it as something little may make it easier to deal with.

Can I ask you ladies. I have the therapy brushes, but mine won't let me touch him with it. He has a meltdown to say the least if I try to do it on his arms or legs. Do you have any ideas? Our OT told me to let him do it himself, but he chews on the bristles rather than rub on his skin.
I should mention he has speech 1x a week and OT 1x a week. He regressed a lot when we were doing therapy 2x a week. He is delayed in all areas except for cognitive ability.

Quoting *J*:" we caught it as something little. and catching it as something little may make it easier to deal with."

I agree. I don't think it will change anything, it will only make the way I go about things with him different. Gosh I <3 my munchkin (I still wish he'd go to bed LMAO)