Forums > Special NeedsPage 1 2 3by: BlueJenn

re: Any Mom's out there with their kid having Aphasia?

posted 13th Jun '12
Awe hun! I'm sending you the tightest biggest hug ever! Sorry it took so long for me to reply. I actually have been thinking of you for the past few days wondering how you were doing.

My husband was the same. It was all in my head and I was freaking out for nothing even with the therapists' reports as proof. Don't feel down about it you are doing great and I'm sure he will come around. It's a hard thing to face for sure.

Of course your LO is normal. Special needs kids are as normal as any other child, they just process things at a different pace with different tactics   It's too bad for the speech therapy class but a good thing in a way since she is somewhat advanced. Just make sure you don't get bullied into being refused help for your girl when you know she needs it. A different class at her level will be good for her but if you feel she still needs help, fight for it!

You will learn that fighting for a special needs child is a 24/7 thing for moms. It's one battle after the other, can be exhausting and frustrating but you can do this! You're a strong woman and I know you will do great  

As for her searching her words. Keep note of those and start keeping notes to see if she may have a hard time following and maintaining focus on a conversation with another person versus having a hard time communicating her needs. Like if you are having a conversation with her and she tries for a while, then flips back and forth with unrelated things and needs to be brought back to focus all the time.

If she is in fact having a hard time finding her words just be patient and let her do it. I found that staring at Jason and saying "Ok"..."and" etc. Trying to get him to say it made the blockage even worse. After she is done repeat what she asked in the form it should have been said. For example: "Mom..um..um..apple..umm...umm me?" (this could take several minutes, will seem long but let her finish it. Give her the attention without cutting her off. If she trails off just ask "What are you asking me?") After she is done say "Mom can I have an apple?" then she will say yes if that's what she asks. You are confirming you understood what she asked and repeating it is enough to show her the proper way to say it. Making it a therapy every time she tries to ask something by making her repeat over and over and teaching her syntax can seem overbearing and she could end up just shutting down and stop trying to communicate. Then just say either "yes you may have an apple" or "No but you may have it after dinner" etc. Whatever the proper response may be.

Or use the 2-3 word sentences like we spoke of earlier. "I want apple?" or "I eat apple?".

Keep it up hun, you are doing amazing  
quote
I have 3 kids & live in Quebec
posted 22nd Jun '12
Sorry it took me a while to reply... I did read it when it was sent, but I've been a busy bee.
Oh yeah i know shes normal, it's just a lil quirk about her that we live with. Oh i fight all the time and ask questions with the therapists, when is there gonna be a program, when can she get into see a therapist regularly, etc. I know its going to be a never ending fight...

Your kind words and wisdom always help and cheer me up!!  
Your examples do really help as well. Like on ways to change the way I talk to her.

Today she said "I fell down" oh you did. Where did you fall down. "In the trash" oh, you fell down in the trash. "yeah". She cracks me up! hahahaha, cause her Dad's gf said she didnt fall esp not in the trash. hahaha. Silly kids.
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I have 1 child & live in Everett, Washington
posted 22nd Jun '12
Quoting BlueJenn:" Sorry it took me a while to reply... I did read it when it was sent, but I've been a busy bee. Oh yeah ... [snip!] ... the trash. "yeah". She cracks me up! hahahaha, cause her Dad's gf said she didnt fall esp not in the trash. hahaha. Silly kids."

OMG She sounds so cute! Kids come up with the funniest things to say hahaha.
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I have 3 kids & live in Quebec
posted 25th Jul '12
I've been thinking about you and wanting to up date you on things.
I think she is more searching for the word that she wants to use, when she is says "um something" like it's on the tip of her tounge.
Seems like therapy is working, since the tantums arent lasting as long. I have to admit the books help me too. So I better understand what she is going though.
She has a very busy schedule and it's gonna get even more crazy when school starts. She has OT on wed, and on fridays she has learning with preschool and a sensory class about an hr later later. I am thinking i'm gonna need a calendar for my calendar lol.
She has to have squeezes and pressure points done at least 5 times though out the day, not sure if you have to do those with your kids, but it seems to be helping her. I just hope there is something out there to help her balance wise she is always tripping and falling  
Kids do say the cutest, sweetest, most funniest things!! Some of the things that come out of her mouth just make me crack up!!
I hope you and your family are enjoying and having a great summer.
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I have 1 child & live in Everett, Washington
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