Forums > Parents with PreemiesPage 1 2 3by: Logan&Lilly's Mommy

SOMEONE PLEASE HELP!!!!

posted 25th Mar '12
A girl that I know had her son at 24 weeks, hes stable and is breathing room air but he needs a few surgeries and she needs someone that will operate on her baby boy, hes 1 lb 4 oz. She doesnt care where she has to go she just needs him to get this surgery..
This is whats wrong with him.. Heres a post off of her facebook.

FAMILY AND FRIENDS FROM EVERY STATE AND COUNTRY. Contact your news and get on air and find a surgeon that will operate on my 1 pound 4 1/2 ounce son! He has tumors in his brain and heart. He is STABLE. The problem is his hydrocephalous. Which is fluid build up in his brain. I need a doctor that will try and operate on him due to his small size. I, Donna Lorraine Boutalis, Wesley's mom give you permission to help me and my son. Whatever information, I give you permission to release. Please contact me if you found someone. I am desperate for help.
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I have 2 kids & live in Virginia
posted 25th Mar '12
what do you mean he's breathing room air?
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I'm due November 13th (a girl), have 1 child & 2 angel babies & live in Maryland
posted 25th Mar '12
Not meaning to sound rude, but couldnt that hurt him. (Him being so small, and having brain issues. ) if a procedure was done right now if he is stable?
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I have 2 kids & 2 angel babies & live in Tennessee
posted 25th Mar '12
Quoting Black Panther™:" what do you mean he's breathing room air? "

I would assume that means hes not on a ventilator
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I have 2 kids & live in Prince Edward Island
posted 25th Mar '12
The closest hospital, perhaps? And breathing room air at 24 weeks? That's not possible...unless I'm not reading it right.
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I have 15 kids & live in Colorado Springs, Colorado
posted 25th Mar '12
Micro preemie with brain and heart tumors? Tell her to enjoy her time with him. Not every baby can be saved. He's probably too small and weak for the invasive surgeries.
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I have 1 child & live in Boston, Massachusetts
posted 25th Mar '12
i dont understand why the doctors where the baby is at wont do any thing. and i know here if babys are born that small they take them to the childrens hospital.
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I have 1 child & live in Minnesota
posted 25th Mar '12
My heart goes out to them.... but perhaps he is beyond even the most skilled surgeons saving

He could simply be too little for surgery
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I have 1 child & live in Rochester, New York
posted 25th Mar '12
Quoting Black Panther™:" what do you mean he's breathing room air? "
Hes not on oxygen. And hes not on any medication so hes stable he just needs these surgeries to help him.
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I have 2 kids & live in Virginia
posted 25th Mar '12
Quoting Nicole m Jackson:" i dont understand why the doctors where the baby is at wont do any thing. and i know here if babys are born that small they take them to the childrens hospital."
The surgeons where he is say hes to small for them to operate on.
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I have 2 kids & live in Virginia
posted 25th Mar '12
Quoting Jessica™:" The closest hospital, perhaps? And breathing room air at 24 weeks? That's not possible...unless I'm not reading it right."

He was born february 23. hes breathing room air.
http://www.facebook.com/media/set/?set=a.1485500256277.66193.1197028611&type=3#!/pages/The-Battle-of-Baby-Wes/195679340533993
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I have 2 kids & live in Virginia
posted 25th Mar '12
Quoting Logan&Lilly's Mommy:" Hes not on oxygen. And hes not on any medication so hes stable he just needs these surgeries to help him."

when was the baby born? and what hospital is he at?
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I'm due February 4th, have 6 kids & live in Glen Burnie, Maryland
posted 25th Mar '12
Quoting 5 blessings so far....:" when was the baby born? and what hospital is he at?"
He was born february 23. and hes at Childrens hospital of the kings daughter (CHKD) in Norfolk, VA.
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I have 2 kids & live in Virginia
posted 25th Mar '12
Quoting Jessica™:" The closest hospital, perhaps? And breathing room air at 24 weeks? That's not possible...unless I'm not reading it right."

One of my mother co-workers just had a baby at 24/25 weeks and he is not on a ventilator. Depends on the babies lung development, which is different (within reason) for each baby.
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I have 2 kids & live in Prince Edward Island
posted 25th Mar '12
Quoting Logan&Lilly's Mommy:" He was born february 23. and hes at Childrens hospital of the kings daughter (CHKD) in Norfolk, VA."

That is awesome that he made it to his 1mo bday. He will be in my prayers and i will definately pass the request on to see if anyone has any helpful info....
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I'm due February 4th, have 6 kids & live in Glen Burnie, Maryland
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