re: Pillow Angel
posted 25th Mar
Quoting shea butter:“ now this is where you can disagree with me and bash me, i believe that the life we are given presently ... [snip!] ... i think they are wrong, but who am i to judge they will be judged soon enough for what they have done and not by my hands”
I have absolutely nothing bad to say about your belief of past lives. I just don't like to see people getting attacked for doing the best they can to make sure their daughter has a happy and comfortable life. You're right, me having a handicapped child does not make me right or wrong, but it does give me a lot more knowledge about this than others.
So if your daughter had some kind of health condition that could be helped through medical intervention, you wouldn't do it because you have to "deal with what God gave you"?
I live in Ohio
3737 posts
7201 postsposted 25th Mar
I have been reading and keeping up with this so I am going to again toss out my opinion.
Unless someone has personally had to care for a special needs child who is 100% dependent on someone else for their daily care then you truly can not begin to imagine how hard it is for those parents/caregivers to go through that. I don't agree with the surgery being performed illegally, but I do in some ways understand why they did it.
My brother was eventually placed in a care home because he did become too large for my mother (who was a single mother at the time) to take care of alone. Personally I give kudos to these parents who are taking on the responsibility to care for their special needs children on their own or hell even with the help of a home nurse. It is very stressful especially when they are aggitated and crying and you can't figure out what it is that they want, it truly is like caring for an infant but instead of them eventually learning how to communicate with you they forever stay in that infant state.
People can place their religious feelings into this which is fine if that is what you believe in, but it all boils down to the main point that if you haven't personally had to care for a child like that little girl then you truly have no idea how hard it would be. I don't think the parents doing what they did was done in any means to harm her but to give them a better chance at being able to continue caring for her.
I can speak on this topic from exeprience as I did aid in taking care of my handicapped brother, but I wouldn't speak on a subject of something that I had personally not been through or fully understood or could relate to in some sort of way.
quoteUnless someone has personally had to care for a special needs child who is 100% dependent on someone else for their daily care then you truly can not begin to imagine how hard it is for those parents/caregivers to go through that. I don't agree with the surgery being performed illegally, but I do in some ways understand why they did it.
My brother was eventually placed in a care home because he did become too large for my mother (who was a single mother at the time) to take care of alone. Personally I give kudos to these parents who are taking on the responsibility to care for their special needs children on their own or hell even with the help of a home nurse. It is very stressful especially when they are aggitated and crying and you can't figure out what it is that they want, it truly is like caring for an infant but instead of them eventually learning how to communicate with you they forever stay in that infant state.
People can place their religious feelings into this which is fine if that is what you believe in, but it all boils down to the main point that if you haven't personally had to care for a child like that little girl then you truly have no idea how hard it would be. I don't think the parents doing what they did was done in any means to harm her but to give them a better chance at being able to continue caring for her.
I can speak on this topic from exeprience as I did aid in taking care of my handicapped brother, but I wouldn't speak on a subject of something that I had personally not been through or fully understood or could relate to in some sort of way.
I'm due July 11th (a girl), have 1 child & live in West Virginia
posted 26th Mar
Quoting shea butter:“ now this is where you can disagree with me and bash me, i believe that the life we are given presently ... [snip!] ... i think they are wrong, but who am i to judge they will be judged soon enough for what they have done and not by my hands”
Here it is, I don't know what I did!:
I have absolutely nothing bad to say about your belief of past lives. I just don't like to see people getting attacked for doing the best they can to make sure their daughter has a happy and comfortable life. You're right, me having a handicapped child does not make me right or wrong, but it does give me a lot more knowledge about this than others.
So if your daughter had some kind of health condition that could be helped through medical intervention, you wouldn't do it because you have to "deal with what God gave you"?
I live in Ohio
6714 postsposted 26th Mar
Wow, I for one have never had to deal with a handicapped person, but I will tell you that if I have a child with one, I will not strip them of the things that make them.I can't fathom why in the world you would pick apart a person. I understand that they have to do a lot of the care giving, but many of people everyday deal with this and they don't dissect the person. I wonder if ever there is a "cure" or something in the future that can be done to help these people, what are they going to do? They have done things that can't be reversed. I hope that either way she has a healthy and happy life.
quoteI'm TTC since December '06 & live in North Carolina
posted 26th Mar
Quoting LJH:“ Here it is, I don't know what I did!: I have absolutely nothing bad to say about your belief of past ... [snip!] ... that could be helped through medical intervention, you wouldn't do it because you have to "deal with what God gave you"?”
medical internevtion, is this what you call it, what if they do find a cure just as they have found a cure for the strand fragileXof of autism that can and does reverse the effects of autism, like mandie said, they then are left with a shorter, breastless child, i dont agree with this one bit, that is not medical intervention by the way, you are confused i think with modern medicine, what they have done is not modern medicine, but rather an illegal precedure to stunt achilds growth over1foot,again i ask, how much of a difference does one foot make, i guess next they are gonnafeed her less soshe doesnt get overweight, and if you think thatsounds obsurd thats because it is, just like what they have done isobsurd, what if the child develops thirhoid problems, no matter how short or tall the child is going to gain a lot of weight, so really length has nothing to do with it with a persons total size
I have 1 child & live in Georgia
posted 26th Mar
Quoting shea butter:“ medical internevtion, is this what you call it, what if they do find a cure just as they have found ... [snip!] ... short or tall the child is going to gain a lot of weight, so really length has nothing to do with it with a persons total size”
Ok, well I guess we're going to just have to agree to disagree. Hopefully you will never have to face anything like this with your children.
I live in Ohio
2591 postsposted 26th Mar
Quoting shea butter:“ medical internevtion, is this what you call it, what if they do find a cure just as they have found ... [snip!] ... short or tall the child is going to gain a lot of weight, so really length has nothing to do with it with a persons total size”
Like I said I couldnt do it BUT I see why. Someone with that usually will not live as long as another with the same problem if they are bigger because as they gets older, taller, and heavier they require alot more movement which becomes a stuggle to anyone who takes care of them and people just get wore down and stop caring because they see it as not helping anymore. They just cant keep up with the needs of a bigger person.Doing what they did gives the child a better chance at surviving long enough to get the cure if there ever is one. The way I see it in the end atleast they are "trying" to improve their childs quality of life.
I'm due October 24th, have 3 kids & live in Alaska
3098 postsposted 26th Mar
Quoting LJH:“ ”
Lack of empathy is what makes this world despicable much of the time--most of us are either unwilling or unable to put ourselves in others' shoes.
Sad but true.
I have 1 child & live in Connecticut
3054 postsposted 27th Mar
I dont think it right... my example: some one who breaks there back and is disabled for the waist down, deemed never to walk again.. what should we do? He cant use his legs again....LETS CHOP THEM OFF! They would just be in the way of the wheelchair, moving him from bed to chair, to bath, etc.... HOWEVER given the chance the boy/girl would possibly walk again with enoguh theropy... But if we chop his/her legs off how would we ever know? We destroy that persons chance of ever fully recovering... Now I dont know much about the disorder Ashley had, but arnt some people with down syndrom, autism, and other mental handicaps usually very ARTISTIC and musically inclined? but if we stop their growth then they never have that chance at that kind of life.. Ashley may have had a mentality of a 4 month old at age 6, but who knows if she would have matured any further given the chance? Thats like locking a dog in a cage 24/7 and then compaining that he doesnt play or his dismeaner is off.. Well he wasnt given the chance to be a happy dog...
quoteI'm due July 28th (a girl) & live in Safford, Arizona
posted 27th Mar
Quoting RobinJ85:“ I dont think it right... my example: some one who breaks there back and is disabled for the waist down, ... [snip!] ... cage 24/7 and then compaining that he doesnt play or his dismeaner is off.. Well he wasnt given the chance to be a happy dog...”
They didnt alter her brain just stop the physical development. Would she ever mature mentally it could possibly be easier for her to become mobil because she has less weight to push around when she doesnt have the muscle to do so. Muscles dont strenghten if you dont use them as she is unable to do making any real movement extremely difficult.
I'm due October 24th, have 3 kids & live in Alaska
1827 postsposted 27th Mar
Quoting LJH:“ Ok,you've latched on to the cleft palate example,but you made no mention of any of the other points ... [snip!] ... will always remain so. Sotell me how this has negatively impacted her. Give me some examples of how this has harmed her.”
I am not excusing some of the others language towards these parents. I am not calling them monsters. I just dont agree with what they did. Plain and simple.
Agree to disagree. I would never do that to my child.
I have 1 child & live in Tucson, Arizona
244 postsposted 5th May
This is one of the most rediculous things I've heard of in a long time. I have a disabled sister and we changed her diapers until she was 14 and we were finally able to potty train her. She has her period and breasts and that's the way it should be. The only thing my mom opted to do was put her on birth control because she gets bad periods and doesn't really understand it.
I also worked at a camp for disabled children and I changed many a little girls cloths and gave them showers and it never bothered me a bit. It's rediculous that her parents did that to her. She is a human being just like everyone else. They just did it for their own convience and it's just dumb.
quoteI also worked at a camp for disabled children and I changed many a little girls cloths and gave them showers and it never bothered me a bit. It's rediculous that her parents did that to her. She is a human being just like everyone else. They just did it for their own convience and it's just dumb.
I'm due October 27th & live in Baton Rouge, Louisiana
posted 9th May
Quoting LJH:“ ”
they disected this poor girl to make it more convienant for them and i stand by that, and i realize this was posted a while back but i am just seeing this as it was resurfaced by the person above, and having a medical procedure to correct a problem is something totally different than taking out her breast and stunting her growth, and NO i would never do something like that to my child, thats is absolutley absurd and i will repeat, it is not medical intervention
I have 1 child & live in Georgia
6322 postsposted 9th May
part of me can understand..but the other part of me thinks they are monsters. with a disability or not, I cant imagine putting my kids through so much.
quoteI'm due September 30th (a girl), have 2 kids & live in Lawton, Oklahoma
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